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changing perceptions…
Yesterday was the fourth anniversary of my twenty-ninth birthday. For those of you who hate math, that means I turned 33. For four years now I’ve refused to officially turn 30, not because I’m afraid...
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priority eating of the handicapped…
Earlier this week I had an appointment with the California DMV to obtain a disabled parking card. I had considered getting one for a while but kept putting it off. Having a disabled parking placard,...
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invisible illness week…
This week is National Invisible Chronic Illness Awareness Week! In observance, this website is putting on a virtual conference all week with some great speakers on topics that pertain both to the...
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blogging award…
Within the past week I have been nominated for TWO blogging awards!! I can’t even begin to tell you what an honor this is. I kept a blog while studying for the California bar exam, but Musings of a...
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Global Dysautonomia Awareness…
Hello and Happy Autumn to you all! October is Global Dysautonomia Awareness month! Don’t worry if you didn’t know – this is actually the first ever Global Dysautonomia Awareness month!! Dysautonomia...
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a dysautonomiac’s trip to the immunologist…
As you may remember from my last post, I finally saw my new immunologist last week. This doctor’s profile indicates that she primarily works as a pediatric immunologist, but also accepts adult...
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the road is life: tips for traveling with a chronic illness…
As you may remember, in my last post, chronic voyage, I discussed my recent unsatisfactory trip to the desert. Traveling can be taxing for even the healthiest of individuals – it is no surprise it can...
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too much of a good thing: bradycardia…
It’s no secret I don’t like being on medication. I’m still skeptical about the long term effects of putting chemicals in my body. And while I appreciate not having a ridiculously high heart beat, I...
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the heat is on…
Holy Heatwave, Batman! We have been having an unprecedented heatwave here in southern California. Certainly this time of year, temperatures are expected to rise – that’s no surprise. In fact, I don’t...
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invisible illness week 2013
This week is National Invisible Chronic Illness Awareness Week! In observance, invisibleillnessweek.com offers some great articles and podcasts for those with chronic illnesses and their caregivers. I...
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flights are like doctor visits…
…even when they’re good, they’re still really bad. I never loved air travel prior to dysautonomia, but it’s no secret that I now loathe flying. Airports and airplanes combine some of the most...
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something, something darkside…
A good friend of mine wrote a blog series for the Spirit of War military blog about suicide in September for suicide awareness month. As suicide has been an important issue in the military community...
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SSRI withdrawal…
After being diagnosed with POTS, the first medication I was prescribed was a selective serotonin reuptake inhibitor (SSRI). SSRIs are antidepressants but are often prescribed for off-label uses as...
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happy new year…
Just wanted to wish you all a very happy start to 2015! May your new year be filled with love, happiness, and above all….good health! I’m home with a headache which is slowly inching towards migraine...
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invisible illness week: 30 things about me…
This week is National Invisible Chronic Illness Awareness Week! In observance, invisibleillnessweek.com offers some great articles and podcasts for those with chronic illnesses and their caregivers. I...
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understanding invisible illness…
Like usual, I’m behind on my blog posts. I have about 5 drafts on different topics, but have yet to find the time to finish any of them. As you know, lots going on around here lately with my mom...
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Hi friends, I’d like to tell you that the title for this post is some deep metaphor for the wisdom I’m about to bestow, but it’s actually very literal. I made some updates to this blog, and they were...
View Articlestop comparing every illness to cancer…
I expect this post will be wildly unpopular, but I am going to say it anyway. Stop comparing every illness to cancer. The day I received my chronic illness diagnosis still ranks among the worst days of...
View Articlesuicide survey…
Standing Up to POTS (an organization for which I serve on the Board) is partnering with counselors and suicide prevention specialists to tackle the issue of suicide risk in chronically ill populations....
View Articlethe patient caregiver…
I have mentioned this before, but being a patient who is also a caregiver is one of the more capricious dichotomies of my life. I certainly never expected to be a patient at this age, and I hoped for a...
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