administrative updates…
Hi friends, I’d like to tell you that the title for this post is some deep metaphor for the wisdom I’m about to bestow, but it’s actually very literal. I made some updates to this blog, and they were...
View Articlestop comparing every illness to cancer…
I expect this post will be wildly unpopular, but I am going to say it anyway. Stop comparing every illness to cancer. The day I received my chronic illness diagnosis still ranks among the worst days of...
View Articlesuicide survey…
Standing Up to POTS (an organization for which I serve on the Board) is partnering with counselors and suicide prevention specialists to tackle the issue of suicide risk in chronically ill populations....
View Articlethe patient caregiver…
I have mentioned this before, but being a patient who is also a caregiver is one of the more capricious dichotomies of my life. I certainly never expected to be a patient at this age, and I hoped for a...
View Articleinvisible…
Today marks the end of Invisible Illness Week and, as you may remember, October is Dysautonomia Awareness month. In the past I have helped organize events and fundraisers during the month of October,...
View Articleinked…
A couple weeks ago, I may have had a mid-life crisis and had this done: It is my first tattoo, and I am entirely too old to be getting a first tattoo. And way too uncool. I’d like to tell you a little...
View Articlegetting a tattoo with a chronic illness…
Like it does with most things in life, having a chronic illness can complicate the process of getting a tattoo. I have put together a list of considerations for anyone with a chronic illness...
View Articlewhy the chronically ill make good friends…
I have never been great at making friends. When I was younger, part of that stemmed from self-doubt, because I didn't have a lot of hobbies and was only mediocre at most "kid" things like drawing,...
View Articleunseen…
Earlier this year, I wrote about a family reunion trip to Lake Tahoe and how I had to miss out on most of the activities due to postural orthostatic tachycardia syndrome (POTS), mast cell (MCAD), and...
View Article2019 resolutions…
Each January, I typically engage in the futile art of resolution-making, although I'm not sure what I make actually qualify as "resolutions". It's more like a really long to-do list of goals I'd like...
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